The NHS Proton Registry

The Registry in numbers

• 5,676 Patients in the Registry
• 1,367 Proton Overseas Programme patients
• 2,013 Treated at The Christie
• Figure to follow Treated at University College London Hospitals (UCLH)

Data from 2008 to the present. More about our data.

Why the Registry exists

Proton beam therapy is a specialised form of radiotherapy. The NHS provides it at two national centres: The Christie in Manchester and University College London Hospitals (UCLH). Because it is a rare, high-cost national service, and many of its patients are children and young people, the NHS needs a systematic record of who is referred, how they are treated and what happens to them afterwards.

The Registry supports the safety and effectiveness surveillance of NHS proton beam therapy, including side effects that may appear many years after treatment, and enables approved research that improves future care.

• For patients

  What the Registry holds about you, who can see it, and how to object.

• For researchers

  What the Registry offers and how to apply for access to its data.

• Our data

  A catalogue of what the Registry records, with headline figures.

• Protecting data

  How identifiable information is kept apart and how access is controlled.

Who runs the Registry

The Registry is operated by The Christie NHS Foundation Trust, through its Proton Clinical Outcomes Unit. It is designed to bring together records from both treating centres and from the NHS Proton Overseas Programme. Applications to use the data will be considered by the Registry's Data Access and Management Committee. More about the Registry.